Family Sues for 'Life-Saving' Drug

time.com     Jul 18, 2008            

— A Minnesota family is trying to force a New Jersey drug company to give their son an experimental drug for a fatal form of muscular dystrophy, saying he'll die without it. The boy's mother, Cheri Gunvalson, who helped persuade Congress to significantly boost spending to find a cure for the disease, filed a lawsuit along with her husband and son in federal court in New Jersey this week. Jacob Gunvalson, 16, suffers from Duchenne muscular dystrophy, a genetic, degenerative disease that mostly affects young boys. Typically, those who suffer from it die in their 20s because of weakness in their heart and lung muscles. There is no known cure, but the Gunvalson family believes the experimental drug holds hope. The family claims that PTC Therapeutics of South Plainfield, N.J., repeatedly promised them Jacob would have access to... [read full story]                    

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